no answer for the weary...

Over the past month I've added a new doctor to my very long list-dermatologist.  I've had this terrible rash from head to toe!  It continually got worse.  So, I head to the dermatologist he examines me, sits down, and with folded arms say, "Wow, that's impressive.  I don't think I've ever seen anything like that"....and he did a biopsy. 

A couple Thursday's ago as I'm hooked up just about to start my remicade and I get the call....one of your slides is showing shingles--STOP THE REMICADE!  On meds for shingles I go and back to derm. ASAP to give him more skin! 

I was able to have my remicade a week late and boy was I feeling every single day!!  I've also gone back for the stitches removal and follow up to dermatologist.  Here's his words...

"You present an interesting case.  If I diagnose you, it would be a guess.  You have so much going on.  If you have another huge break out I need to see you immediately so that we can try and figure this out, but I hope not to see you anytime soon". 

Thanks for the 3 co-pays, I don't have a clue what's wrong with you, and bye.

The life of one living with ankylosing spondylitis is an interesting one for sure.  Who knows why my body has decided to have an itchy rash that in some places presents as shingles but mostly looks as if I'm covered in chill bumps (which I'm not).  When I say I'm covered from head to toe....I mean I'm covered from head to toe--I checked the bottom of my feet and it's not there ;)

As for the shoulder and the recovery, it's going well.  I'm finally able to raise my hand/arm over my head.  There is still a great deal of pain, but I'm finally able to see the progress.  So, what's next...don't know really.  I know there's a problem with my right knee, my neck and the new problem of the middle back and ribs really bothering me.  Again, all the life of living with AS.  What's happening under my skin--who knows??!!!  but I do know this....

AS has my body, but NOT ME!
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